My daughter is 10 months old and she was born with a heart defect also . so far she has had two heart surgeries and a stomach surgery . she still has to be fed through a tube but other than that she is doing great . she still has a couple more heart surgeries to go as she gets older so beleive me when I say I know exactly how you feel and what you and your family are going through . Yall are in me and my families prayers . Pretty much all you can do is talk to the man upstairs and put it in his hands . im praying and hoping it all turns out alright .